Hello I'm Shelley Quinn and welcome 00:00:30.09\00:00:32.16 again to Issues and Answers. We're so glad that 00:00:32.19\00:00:34.98 no matter where you live around the world 00:00:35.01\00:00:36.74 that you're joining us today and allowing us 00:00:36.77\00:00:38.90 to bring you a message of encouragement and hope 00:00:38.93\00:00:41.92 and I believe it will be proved to be 00:00:41.95\00:00:44.24 very uplifting to you. Before I tell you 00:00:44.27\00:00:46.61 about today's topic I want to share 00:00:46.64\00:00:48.22 one of my favorite Bible verses with you 00:00:48.25\00:00:50.13 and it comes from Luke 1 in verse 37. 00:00:50.16\00:00:53.33 And let me set the stage; this is when the angel had 00:00:53.36\00:00:57.39 told Mary that she is going to have the Son of God. 00:00:57.42\00:01:00.84 And she is saying how's that going to happen, 00:01:00.87\00:01:03.68 I'm a virgin. How am I going to have the 00:01:03.71\00:01:05.47 Son of God? And he said Holy Spirit 00:01:05.50\00:01:08.26 will over shadow you, God's gonna speak 00:01:08.29\00:01:10.59 this into your life, plant his seed, 00:01:10.62\00:01:12.84 his Holy seed in you. And then the angel tells her, 00:01:12.87\00:01:16.84 for with God nothing is ever impossible. 00:01:16.87\00:01:21.55 Now most Bible translations stop there 00:01:21.58\00:01:24.70 but the Greek actually says and no word from God 00:01:24.73\00:01:30.13 is without power or impossible of fulfillment. 00:01:30.16\00:01:33.76 And I'll tell you what, today we have two special guests 00:01:33.79\00:01:37.77 with us who know that nothing is impossible 00:01:37.80\00:01:40.93 with God and they know that you can count 00:01:40.96\00:01:43.50 on the promises of God. And let me introduce to you 00:01:43.53\00:01:47.28 our very special guests we have Esther Castillo, 00:01:47.31\00:01:50.21 Esther, so glad that you're with us today. 00:01:50.24\00:01:52.64 Thank you so much for the honor of having us here. 00:01:52.67\00:01:55.58 And we, we're delighted, we also have your very special 00:01:55.61\00:01:59.69 and charming son and that is Pedro Acevedo. 00:01:59.72\00:02:03.35 Pedro, welcome. Thank you. You're welcome. 00:02:03.38\00:02:06.92 Now we are going to be talking today about a topic 00:02:06.95\00:02:11.16 that's a difficult topic and its something 00:02:11.19\00:02:13.67 that it's a condition that's on the rise 00:02:13.70\00:02:15.47 in United States and around the world, 00:02:15.50\00:02:17.33 and that's autism. And you know some people 00:02:17.36\00:02:20.08 can go to medical training and become, 00:02:20.11\00:02:24.39 gain expertise through schooling, and some people 00:02:24.42\00:02:27.77 have a little more difficult road to travel, 00:02:27.80\00:02:29.86 they gain their understanding 00:02:29.89\00:02:31.51 and expertise through experience, 00:02:31.54\00:02:33.19 and you have gone down that road. 00:02:33.22\00:02:36.07 Let me start with you Esther, 00:02:36.10\00:02:38.43 what if you could in layman's terms 00:02:38.46\00:02:42.28 explain to us what is autism? 00:02:42.31\00:02:45.99 I would rather kind of read it even though as a mother, 00:02:46.02\00:02:52.62 I could explain to you what is autism in my life. 00:02:52.65\00:02:55.34 I could describe about a disorder 00:02:55.37\00:02:58.43 that really effects the left side of the brain 00:02:58.46\00:03:00.65 which is the center of communication, okay. 00:03:00.68\00:03:03.67 And when a person is impacted with this disorder 00:03:03.70\00:03:07.62 because it responds different, 00:03:07.65\00:03:09.80 no one single person reacts the same way 00:03:09.83\00:03:13.66 but it is described as a complex developmental 00:03:13.69\00:03:18.41 disorder that appears in the first three years 00:03:18.44\00:03:21.00 of life, in Pedro's case was 18 months old, 00:03:21.03\00:03:23.99 one year and half. You know that it is sometimes 00:03:24.02\00:03:26.97 diagnosed much later. It effects 00:03:27.00\00:03:31.04 the brain's development of social 00:03:31.07\00:03:33.76 and communication skills, okay. So once that person, 00:03:33.79\00:03:39.07 that child can't communicate anymore 00:03:39.10\00:03:41.81 it has the tendency to isolate. 00:03:41.84\00:03:44.75 They can understand everything you're saying 00:03:44.78\00:03:47.57 but the fact that they can not communicate to you. 00:03:47.60\00:03:50.62 Yes, I understand what you're saying, 00:03:50.65\00:03:53.28 I wanted to understand that I'm in pain, 00:03:53.31\00:03:56.80 I want you to understand that I realize 00:03:56.83\00:03:59.57 that I am making funny faces 00:03:59.60\00:04:00.84 and you're making fun of me. 00:04:00.87\00:04:02.18 I want you to understand that yes I am aware 00:04:02.21\00:04:05.56 that you're calling me retarded, 00:04:05.59\00:04:07.54 or you're calling me these names, 00:04:07.57\00:04:08.96 or you restraining me because I can not 00:04:08.99\00:04:12.30 explain to you that I am oversensitive 00:04:12.33\00:04:14.73 to all of those your scheme to the fabric 00:04:14.76\00:04:18.11 that I have on. And it does effect, 00:04:18.14\00:04:20.32 I would say not only communication 00:04:20.35\00:04:22.31 and socialization, but it also as effects 00:04:22.34\00:04:25.76 the hearing, sometimes they have hyper-acuity, 00:04:25.79\00:04:29.28 the vision. You stop there, when you say hyper-acuity 00:04:29.31\00:04:33.21 of hearing, what do you mean? 00:04:33.24\00:04:34.54 I mean that they can hear a lot more 00:04:34.57\00:04:36.70 than a normal person. So they've got the ears 00:04:36.73\00:04:40.69 I mean we say like the eyes of the eagle 00:04:40.72\00:04:43.12 and the ears of, dogs have hypersensitivity 00:04:43.15\00:04:45.86 so they can, is this the reason that they often, 00:04:45.89\00:04:49.93 they flap their ears because they, 00:04:49.96\00:04:53.16 if the pitch of your voice they can not tolerate, 00:04:53.19\00:04:57.18 it could cause pain like when your nail, 00:04:57.21\00:04:59.67 you have a nail and you hammer 00:04:59.70\00:05:01.75 the nail inside of the ears so, oh mercy. 00:05:01.78\00:05:03.87 Pedro went through that, we couldn't use 00:05:03.90\00:05:06.04 the vacuum cleaner, we couldn't use the blender. 00:05:06.07\00:05:09.10 If I was driving and Pedro was in the back seat, 00:05:09.13\00:05:11.60 and an 18 wheelers truck was passing by 00:05:11.63\00:05:14.33 and he was in the back seat, he was going to pull 00:05:14.36\00:05:16.40 my hair and yank it just to let me know stop the noise 00:05:16.43\00:05:21.63 of that truck because it's causing me pain, mercy, 00:05:21.66\00:05:24.66 I didn't know those things. So now, 00:05:24.69\00:05:27.40 he was 18-months-old and explain to us 00:05:28.48\00:05:33.37 how you learned about this diagnosis, 00:05:33.40\00:05:36.32 the first 18-months of his life he appeared to be 00:05:36.35\00:05:39.46 absolutely normal and then suddenly something happens, 00:05:39.49\00:05:43.25 how did you learn? Pedro had an ear infection 00:05:43.28\00:05:47.12 and the pain was unbearable. 00:05:47.15\00:05:49.59 The fever started going up and I remember that Sunday 00:05:49.62\00:05:52.88 putting everything suppositories 00:05:52.91\00:05:54.34 and cold compresses and everything to bring 00:05:54.37\00:05:57.04 the fever down, but he didn't responded 00:05:57.07\00:06:01.89 to everything that I was doing, before that may be 00:06:01.92\00:06:05.96 I need to explain to you that my daughter Dina, 00:06:05.99\00:06:09.22 my oldest daughter. Every woman wants to be a mother, 00:06:09.25\00:06:13.28 so I became a mother when I was 31, 00:06:13.31\00:06:15.10 I wanted more to be a mother than being married, 00:06:15.13\00:06:17.15 so I was all excited being married having my baby 00:06:17.18\00:06:21.04 six weeks after she was one day discovered 00:06:21.07\00:06:23.01 that she was born with a complete AV canal, 00:06:23.04\00:06:25.92 she had a hole that was gathered 00:06:25.95\00:06:27.36 in the four chambers of her heart, Oh mercy. 00:06:27.39\00:06:29.63 And she was declared clinically dead, 00:06:29.66\00:06:32.09 three-months old she was in ICU 00:06:32.12\00:06:33.72 having the first surgery. They decided just to close 00:06:33.75\00:06:39.41 the pulmonary artery because every time 00:06:39.44\00:06:41.20 that the heart was closing the blood 00:06:41.23\00:06:43.48 was going into her lungs. Those 35 days that I was 00:06:43.51\00:06:46.40 in the hospital my husband became an alcoholic 00:06:46.43\00:06:49.09 because he couldn't go home and think that two woman 00:06:49.12\00:06:51.98 of my life are not home, so he spend 00:06:52.01\00:06:53.74 those thirty five days and nights across the hospital 00:06:53.77\00:06:56.15 drinking, drinking, drinking. And even though 00:06:56.18\00:06:59.30 he wasn't a believer there were days that the church 00:06:59.33\00:07:03.01 was praying so hard that my daughter 00:07:03.04\00:07:05.02 was anointed today, could just survive 00:07:05.05\00:07:08.15 and there was one night when he had a voice 00:07:08.18\00:07:10.97 that says she will be fine. So he told me don't cry 00:07:11.00\00:07:14.97 anymore, because I was like angry, 00:07:15.00\00:07:16.74 I went to another room because I didn't want 00:07:16.77\00:07:18.96 to see her dying already. And he told me stop crying, 00:07:18.99\00:07:22.23 she will be fine and I am gonna take her, 00:07:22.26\00:07:24.55 I am going to fix that surgery even though 00:07:24.58\00:07:26.92 she didn't have the first surgery 00:07:26.95\00:07:28.21 and I will pay a plastic surgeon 00:07:28.24\00:07:30.10 and it was really a miracle because the surgery 00:07:30.13\00:07:33.46 didn't work and all the blood on the lungs 00:07:33.49\00:07:36.20 went to the heart and I was told by the doctors, 00:07:36.23\00:07:39.41 she won't make it. And I said the God 00:07:39.44\00:07:41.71 that I believe in and I ask him to take her, 00:07:41.74\00:07:43.84 if she is going to a shame her. And I promise Him 00:07:43.87\00:07:48.06 to give him my life on the exchange of my baby. 00:07:48.09\00:07:50.49 And if she didn't die with all the morphine 00:07:50.52\00:07:54.08 that you gave her and if she didn't die 00:07:54.11\00:07:56.17 with this first surgery that six girls die 00:07:56.20\00:07:59.09 with the same surgery the same night my daughter 00:07:59.12\00:08:01.52 was the only survivor. She is not going to die now; 00:08:01.55\00:08:04.40 you said that the surgery didn't work. 00:08:04.43\00:08:06.45 So I took my baby home after about ten hours 00:08:06.48\00:08:09.77 of fighting, they told me if she doesn't gain two ounces 00:08:09.80\00:08:12.49 in two days, we are going to keep her baby with us 00:08:12.52\00:08:15.56 because she is going to die. She has anorexia 00:08:15.59\00:08:17.82 and she is losing too much weight. 00:08:17.85\00:08:19.73 The church went into pray and my daughter 00:08:19.76\00:08:22.13 gained the two ounces, and eventually 00:08:22.16\00:08:24.08 at four months old, she decided to drink 00:08:24.11\00:08:26.12 milk again. Praise God, when Pedro is sick 00:08:26.15\00:08:29.57 my husband was really a very 00:08:29.60\00:08:32.24 deep, deep, deep alcoholic. So that they he was, 00:08:32.27\00:08:35.53 first let me ask you what is your daughter's name? 00:08:35.56\00:08:37.75 My daughter's name is Dina, so Dina is how much older? 00:08:37.78\00:08:41.90 She is now 24, oh she is two years 00:08:41.93\00:08:44.86 and half older than Pedro. Two and half years older 00:08:44.89\00:08:47.12 than Pedro, so when he is a year and half 00:08:47.15\00:08:50.70 then she is 4-years-old and now she has miraculously, 00:08:50.73\00:08:56.48 God has proven his promise to your husband 00:08:56.51\00:08:59.42 and what you husband shared with you. 00:08:59.45\00:09:01.87 Dina is a healthy child now at 4-years-old, okay. 00:09:01.90\00:09:05.97 Now you though have a husband who is walking 00:09:06.00\00:09:09.57 the pathway of alcoholism how did he respond 00:09:09.60\00:09:13.37 when he got the diagnosis of Pedro. 00:09:13.40\00:09:16.45 Well, I would say that he was on denial, okay, 00:09:16.48\00:09:20.01 because English was his primary languages. 00:09:20.04\00:09:22.78 He was raised in New York since he was five. 00:09:22.81\00:09:25.44 English was not my primary language, so that night 00:09:25.47\00:09:30.24 as I said that my son had the high fever, 00:09:30.27\00:09:32.27 my husband for several days was not home. 00:09:32.30\00:09:34.59 And here I am, I don't have any car, 00:09:34.62\00:09:37.12 I don't have any telephone, 00:09:37.15\00:09:38.32 I cannot even call an ambulance 00:09:38.35\00:09:39.91 and my baby is dying on my hands with this high fever, 00:09:39.94\00:09:43.19 I just kneel down with Dina and I pray and the pastor 00:09:43.22\00:09:45.83 who was preaching said Esther 00:09:45.86\00:09:46.92 is not here with the children. 00:09:46.95\00:09:48.18 Get out of the pulpit Elder and go and check 00:09:48.21\00:09:51.29 and see what is happening to Esther. 00:09:51.32\00:09:52.98 And I praise the Lord because my brother-in-law 00:09:53.01\00:09:56.06 who was an Elder came to my apartment, 00:09:56.09\00:09:59.61 Pedro was almost dying. So he took us to the hospital 00:09:59.64\00:10:02.75 they sat him on ice when he entered the hospital 00:10:02.78\00:10:06.29 I could say, say mommy, he was going to say mommy; 00:10:06.32\00:10:09.16 but then after they put his body on ice 00:10:09.19\00:10:12.03 I could say Pedro say mommy and he went, 00:10:12.06\00:10:14.49 I took a child to the hospital, 00:10:16.20\00:10:18.97 I came out of the hospital with a different child. 00:10:19.00\00:10:21.19 I lost my first baby that day at the hospital. 00:10:21.22\00:10:25.61 So after that he had no voice whatsoever, really? 00:10:25.64\00:10:29.88 He went back to probably four months 00:10:29.91\00:10:33.13 of communication and he started to laugh 00:10:33.16\00:10:38.02 in the middle of the night to wake us up, 00:10:38.05\00:10:40.44 to rip off his clothes, 00:10:40.47\00:10:41.52 there was no more eye contact. 00:10:41.55\00:10:44.03 And he went like to a word of his own. 00:10:44.06\00:10:48.62 And I know that something was happening to my baby, 00:10:48.65\00:10:51.56 but my husband just told me you are overprotecting him, 00:10:51.59\00:10:54.66 there is nothing wrong. We couldn't have the diagnosis 00:10:54.69\00:10:57.86 until he was four. But before he was four, 00:10:57.89\00:11:01.30 I was begging the pediatrician to please 00:11:01.33\00:11:03.65 let me know what was wrong with my baby? 00:11:03.68\00:11:05.66 And he told me we need to wait for Dina's 00:11:05.69\00:11:07.98 second big heart surgery. Now that she is four, 00:11:08.01\00:11:11.97 if she survived the fixing of her heart 00:11:12.00\00:11:14.60 then we will go over Pedrito and find out 00:11:14.63\00:11:18.01 what is wrong with your son, why'd he cannot speak 00:11:18.04\00:11:20.45 even though he is 2-years-old already, mercy. 00:11:20.48\00:11:24.72 So what was your life changed so much 00:11:24.75\00:11:29.10 then because you've got this beautiful baby boy 00:11:29.13\00:11:32.05 and you've got some pictures of Pedro 00:11:32.08\00:11:34.72 don't you? Let's look at those pictures now 00:11:34.75\00:11:37.14 because he was such a little darling okay, so. 00:11:37.17\00:11:40.42 This is Pedro when he was four months before 00:11:40.45\00:11:44.20 he became autistic; this is the way 00:11:44.23\00:11:47.31 I brought my family from New York. 00:11:47.34\00:11:49.21 We were a complete family; Dina was three, 00:11:49.24\00:11:52.93 he was one and two months old. 00:11:52.96\00:11:55.31 A child that sung with the heritage singers, 00:11:55.34\00:11:59.14 a child that walked when he was 11 months 00:11:59.17\00:12:01.99 and a child that was just so into his cradle at 00:12:02.02\00:12:06.80 Sabbath school and praising the Lord, 00:12:06.83\00:12:10.04 then, he is a darling, yes. Here it is when he was, 00:12:10.61\00:12:16.09 how old were you here Pedro, three. 00:12:16.12\00:12:18.42 When he was 3-years-old with his Daddy, 00:12:18.45\00:12:20.80 he was autistic already, okay, and you could see 00:12:20.83\00:12:24.46 that he is his daddy Frank. So, he is Pedro Junior, 00:12:24.49\00:12:27.06 yes, on that birthday he was freely over stimulated 00:12:27.09\00:12:31.76 because it was too stimulating for him 00:12:31.79\00:12:34.13 with the noises of his birthday, beautiful child. 00:12:34.16\00:12:37.54 In this one was the day when I drop him 00:12:37.57\00:12:40.85 at his first early intervention program. 00:12:40.88\00:12:43.69 They use this star as his report card 00:12:43.72\00:12:46.34 and I was in tears to leave him at his first school 00:12:46.37\00:12:50.28 where he was going to have all of his speech 00:12:50.31\00:12:52.31 and language therapy, occupational therapy 00:12:52.34\00:12:54.94 but he was happy, he was happy there and I praise 00:12:54.97\00:13:00.22 the Lord that I decided to go for early intervention 00:13:00.25\00:13:03.17 because it was a teacher who decided to search 00:13:03.20\00:13:06.55 for the diagnosis for my son. Praise God, 00:13:06.58\00:13:09.18 so though you knew something was wrong 00:13:09.21\00:13:12.39 at 18 months, you didn't know it was autism? 00:13:12.42\00:13:16.01 That's correct, when you found out it was autism 00:13:16.04\00:13:20.33 were you familiar? Had you already gotten 00:13:20.36\00:13:22.19 your bachelor degree, where you already educated 00:13:22.22\00:13:24.05 so you went school then later 00:13:24.08\00:13:25.73 and got your master's degrees even in 00:13:25.76\00:13:27.52 behavior science and education. 00:13:27.55\00:13:30.14 But let's back up, so you knew that Pedro 00:13:30.17\00:13:35.59 something it happened, he quit communicating 00:13:35.62\00:13:37.74 and now he is 4-years-old and he is in school 00:13:37.77\00:13:41.42 and someone comes and tells you he is autistic, 00:13:41.45\00:13:44.95 did you know what that was? That's an excellent question, 00:13:44.98\00:13:48.98 because being that, English is not my primary language, 00:13:49.01\00:13:52.79 yes, when Dina made it through her surgery 00:13:52.82\00:13:58.92 and his pediatrician has no clue what was autism 00:13:58.95\00:14:02.03 all about, so he says I know something is wrong 00:14:02.06\00:14:04.06 with Pedro but let me just look for somebody else, 00:14:04.09\00:14:06.89 give me referral to a neurologist, 00:14:06.92\00:14:09.06 because he referred him for a special language 00:14:09.09\00:14:12.33 evaluation, they found though that he wasn't deaf 00:14:12.36\00:14:15.36 that he could hear perfectly. 00:14:15.39\00:14:17.16 So that was when they realize 00:14:17.19\00:14:18.99 that he was something that have to go with the brain, 00:14:19.02\00:14:20.98 but the special language pathologist 00:14:21.01\00:14:25.73 didn't want to scare me, she didn't want to tell me 00:14:25.76\00:14:27.78 something really, really wrong is happening. 00:14:27.81\00:14:31.15 So when I take him to the neurologist, 00:14:31.18\00:14:33.47 and neurologist told my husband he has an autistic 00:14:33.50\00:14:36.14 like behavior, and my husband kind of understood 00:14:36.17\00:14:39.83 but I was asking my husband what is that; 00:14:39.86\00:14:41.98 autistic like, what is that? 00:14:42.01\00:14:43.49 So still my husband is telling me, he is okay, 00:14:43.52\00:14:47.35 he is fine. So he really was in denial, 00:14:47.38\00:14:50.80 he was in denial and because of my 00:14:50.83\00:14:52.93 language barrier I couldn't find words to explain 00:14:52.96\00:14:56.45 what was wrong with my son? So I would say that 00:14:56.48\00:14:58.96 we wasted two years and a half looking at my son, 00:14:58.99\00:15:02.06 ripping off clothes. In the mean time I'm taking him 00:15:02.09\00:15:05.07 to camp meetings to see the people out of ignorance 00:15:05.10\00:15:08.09 with the good faith anointing him 00:15:08.12\00:15:10.16 to cast the devil away from my baby, oh bless you. 00:15:10.19\00:15:13.08 At the church, I could see that 00:15:13.11\00:15:14.59 they are gonna taking him to the bathroom to whip him 00:15:14.62\00:15:17.00 with the belts because he was very irreverent 00:15:17.03\00:15:19.15 being two years old and he was all the noises 00:15:19.18\00:15:21.78 that he was making like a little animal. 00:15:21.81\00:15:23.68 So, many things happened and I didn't have words 00:15:23.71\00:15:28.54 to explain my son's behavior. 00:15:28.57\00:15:30.11 Now when I pay attention to this speech 00:15:30.14\00:15:33.06 and language pathologist and take him 00:15:33.09\00:15:34.44 to the early intervention program when he was four 00:15:34.47\00:15:38.04 the public school said no we can not pay 00:15:38.07\00:15:41.06 at private school bring him over to the public school. 00:15:41.09\00:15:43.75 And one day he was crying with tears 00:15:43.78\00:15:46.18 that was another thing he didn't cry with tears, 00:15:46.21\00:15:48.20 he could made the faces with tears didn't come out 00:15:48.23\00:15:50.54 of his eyes, okay, but he is crying with tears 00:15:50.57\00:15:52.70 completely mute and the teacher looked at him 00:15:52.73\00:15:55.28 and said I need to call Boston 00:15:55.31\00:15:57.75 because we were in the city of New Bedford, 00:15:57.78\00:15:59.34 and get a developmental psychologist to come 00:15:59.37\00:16:01.79 and observe this child. And the developmental 00:16:01.82\00:16:04.57 psychologist went to the classroom 00:16:04.60\00:16:06.15 then came to my house. And Friday, my husband told me, 00:16:06.18\00:16:11.69 I've been given a diagnosis, 00:16:11.72\00:16:14.27 you were right something was wrong with me. 00:16:14.30\00:16:17.14 Three years after we got married I was HIV Positive. 00:16:17.17\00:16:20.99 Okay now, wow! You were throwing in another, 00:16:21.02\00:16:24.35 so I thought you were saying that your husband 00:16:24.38\00:16:26.57 was going to say yes, we've got the diagnosis for Pedro 00:16:26.60\00:16:30.41 but your husband was also having some symptoms 00:16:30.44\00:16:34.61 and now he goes to the doctor and comes 00:16:34.64\00:16:37.47 and tells you, you're right there is something wrong 00:16:37.50\00:16:41.00 with me your husband, I'm HIV positive, yes. 00:16:41.03\00:16:45.22 Five days after and I am saying this, 00:16:45.25\00:16:47.72 so that you could understand how heavy 00:16:47.75\00:16:50.24 was the impact of Pedro's diagnosis, okay. 00:16:50.27\00:16:53.07 Friday my husband telling me 00:16:53.10\00:16:54.87 I've been given six months to live, six months to live, 00:16:54.90\00:16:58.22 six months to live and on Tuesday, Saturday, 00:16:58.25\00:17:00.84 Sunday, Monday, Tuesday, four days 00:17:00.87\00:17:02.75 after my son's developmental psychologist 00:17:02.78\00:17:06.32 come home and tell me I have a news to give you. 00:17:06.35\00:17:10.04 Your son has a long life developmental disability 00:17:10.07\00:17:13.31 that has no cure. At that moment, 00:17:13.34\00:17:15.63 I was pinching myself, thinking am I alive, 00:17:15.66\00:17:19.03 the two big love of my life my husband 00:17:19.06\00:17:22.63 and my baby are about to go, oh mercy. 00:17:22.66\00:17:28.57 And my husband after that, that he was confronted 00:17:28.60\00:17:32.97 with you have six months to live, 00:17:33.00\00:17:35.37 he decided to kind of having an abusive, 00:17:35.40\00:17:38.46 you know relationship and kind of give Pedro 00:17:38.49\00:17:42.06 and I and my daughter the love 00:17:42.09\00:17:43.69 that we really needed so much. Esther, 00:17:43.72\00:17:46.94 how did you cope with this? Okay your husband, 00:17:46.97\00:17:50.59 you see a behavioral change in your husband 00:17:50.62\00:17:52.58 and he becomes more loving and you are looking at him 00:17:52.61\00:17:58.13 thinking he is going in six months, 00:17:58.16\00:17:59.83 your concern must be devastated thinking 00:17:59.86\00:18:03.33 your beautiful baby boy has got a long term, 00:18:03.36\00:18:07.68 life long developmental disorder, 00:18:07.71\00:18:11.04 how did you cope with this? On my knees, Amen, 00:18:11.07\00:18:15.59 what a great answer, what a great answer, on my knees, 00:18:15.62\00:18:18.48 yes alright. You'd been married eight years, 00:18:18.51\00:18:21.82 I think you've mentioned to me earlier, eight years 00:18:21.85\00:18:25.11 when your husband first got the diagnosis 00:18:25.14\00:18:28.61 he was HIV positive, before we get married, okay 00:18:28.64\00:18:33.40 and he didn't know, we didn't know. 00:18:33.43\00:18:34.68 He was actually HIV positive 00:18:34.71\00:18:36.59 before you married, before, three years before 00:18:36.62\00:18:38.52 we got married. Alright, but now you've been married 00:18:38.55\00:18:40.62 eight years, did you, did he survive longer 00:18:40.65\00:18:45.93 than the six months that the doctors said? 00:18:45.96\00:18:48.70 How long did he survive? Seven more years, 00:18:48.73\00:18:51.53 seven more years and how was that? 00:18:51.56\00:18:54.05 Well he decided to change his lifestyle, 00:18:54.08\00:18:56.96 he became vegetarian. We went to an 00:18:56.99\00:19:01.32 alternative treatment clinic. You know with ozone 00:19:01.35\00:19:05.43 treatment and I always treated him 00:19:05.46\00:19:08.54 like the cane of my life, I never denied him 00:19:08.57\00:19:11.88 of anything because of his diagnosis. 00:19:11.91\00:19:14.56 I encouraging him to go back to school 00:19:14.59\00:19:17.49 and to help me that was when he finally got out 00:19:17.52\00:19:20.91 of the self denial and decided to join forces 00:19:20.94\00:19:23.60 with me who did not know the language 00:19:23.63\00:19:26.12 to go to the school meetings to see how I was being molt 00:19:26.15\00:19:30.59 because my language was so, my accent was so heavy 00:19:30.62\00:19:33.95 that when I was saying, I need help for my baby. 00:19:33.98\00:19:36.60 He is not stupid, he is not a profoundly retarded, 00:19:36.63\00:19:39.47 please you know read, I am enrolled now 00:19:39.50\00:19:42.47 in the Autism Society of America 00:19:42.50\00:19:44.45 and I begged my husband let me go back to school please, 00:19:44.48\00:19:47.85 because he told me you have Dina to take care of. 00:19:47.88\00:19:50.09 Dina was the princess, the baby, and one of things 00:19:50.12\00:19:54.64 that you will read in this book 00:19:54.67\00:19:56.48 that says on your our words was how she cry 00:19:56.51\00:19:58.86 because the day when Pedro was born my husband 00:19:58.89\00:20:01.33 so much into alcoholism that he didn't buy 00:20:01.36\00:20:03.66 a crib for Pedro. So I have to prepare Dina's crib 00:20:03.69\00:20:06.99 and Dina almost killed him with throwing toys 00:20:07.02\00:20:09.91 to that little boy and that was on her crib, yes. 00:20:09.94\00:20:12.29 She didn't understand that he was that, 00:20:12.32\00:20:14.64 I needed to be faithful to my husband and make him 00:20:14.67\00:20:17.70 feel is over with Jesus power. 00:20:17.73\00:20:20.13 You don't need alcoholism, Dina is here, 00:20:20.16\00:20:22.27 the miracle has been done. So it was hard for him 00:20:22.30\00:20:27.06 but he finally, when he realized 00:20:27.09\00:20:29.94 that he was gonna die he decided to, 00:20:29.97\00:20:31.60 not to us said the Lord immediately 00:20:31.63\00:20:33.90 but to pay for a Christian education for my daughter 00:20:33.93\00:20:36.86 to let us finally have family worship with all, 00:20:36.89\00:20:39.30 following those turn into television on. 00:20:39.33\00:20:41.58 They are not going to sing one day at the time, 00:20:41.61\00:20:44.18 praise God, praise God you know and he let me go back 00:20:44.21\00:20:48.95 to school to learn and that was when Pedro 00:20:48.98\00:20:52.91 was my inspiration for me to get my bachelor's degree 00:20:52.94\00:20:55.03 in psychology and we became involving the community, 00:20:55.06\00:20:59.27 I adopted 24 families who didn't speak English 00:20:59.30\00:21:02.56 to let them know about the resources that were there 00:21:02.59\00:21:05.58 and going to meetings with him 00:21:05.61\00:21:07.13 and fighting for the raise of their children. Amen. 00:21:07.16\00:21:10.61 How was life different for you before 00:21:10.64\00:21:13.09 and after autism? Before I would say that 00:21:13.12\00:21:16.80 we were a happy family, even though my husband 00:21:16.83\00:21:19.86 was struggling with alcoholism but Pedro 00:21:19.89\00:21:22.56 was enjoying at home, I mean he was born 00:21:22.59\00:21:25.91 with 10 pounds and 11 ounces, eating like a bird, 00:21:25.94\00:21:28.78 he still eats like that today. But he brought us 00:21:28.81\00:21:31.62 so much peace, you know and he four of us together, 00:21:31.65\00:21:34.36 it was just awesome. Then having my son's diagnosis 00:21:34.39\00:21:39.35 and my husband's diagnosis together, 00:21:39.38\00:21:41.07 it was like leaving one day at the time 00:21:41.10\00:21:43.72 and thinking what can I do to rescue my husband 00:21:43.75\00:21:47.05 and my son. And it must have been so 00:21:47.08\00:21:49.98 terribly frustrating when you recognized 00:21:50.01\00:21:52.40 and started studying on autism that this is a child 00:21:52.43\00:21:56.53 whose understanding you and his frustration, 00:21:56.56\00:21:59.73 his behavioral outburst are because he just can't 00:21:59.76\00:22:04.98 communicate with you and he is so frustrated 00:22:05.01\00:22:07.83 and to try to reach him must have been a very, 00:22:07.86\00:22:10.90 I mean that was a driving factor and he wasn't. 00:22:10.93\00:22:14.68 Now you know I am looking at her time, 00:22:15.53\00:22:18.07 and we have so little time left, you will come back, 00:22:18.10\00:22:21.31 I know we're planning on a second program 00:22:21.34\00:22:23.24 but would you like to talk about 00:22:23.27\00:22:26.36 the types of therapies, do we have time 00:22:26.39\00:22:28.81 and the short time or would you rather reserve 00:22:28.84\00:22:30.67 that for a second program. 00:22:30.70\00:22:32.13 Well I could kind of go over them, in Pedro's case 00:22:32.16\00:22:36.45 the first one that he needed was the speech 00:22:36.48\00:22:39.47 and language therapy with the 00:22:39.50\00:22:41.54 functional pragmatic component, okay. 00:22:41.57\00:22:44.65 And by functional I explain that is not only teaching 00:22:44.68\00:22:46.89 them how to speak. Is teaching them 00:22:46.92\00:22:49.10 how to go to a post office and how to use the language 00:22:49.13\00:22:52.20 to communicate with the real world. 00:22:52.23\00:22:54.01 Pragmatic is the social language 00:22:54.04\00:22:55.90 that he needs to survive in case nobody who loves him 00:22:55.93\00:22:59.12 when he is around them, that's good. 00:22:59.15\00:23:00.17 So his speech and language pathology was on that. 00:23:00.20\00:23:02.78 He also received a auditory integration therapy 00:23:02.81\00:23:05.82 which is the one that desensitize him 00:23:05.85\00:23:08.43 when he was listening to so much noises 00:23:08.46\00:23:12.62 that our voices he couldn't, 00:23:12.65\00:23:14.89 he was covering his ears because the tone 00:23:14.92\00:23:17.64 of our voices. This is the way Pedro used to hear, 00:23:17.67\00:23:20.41 you could see in the top that the sound went all 00:23:20.44\00:23:23.66 the way up from one place to another 00:23:23.69\00:23:26.08 and after ten days this is the way 00:23:26.11\00:23:28.08 they cut off his hearing so that 00:23:28.11\00:23:30.91 he wouldn't be impaired. So they had the, 00:23:30.94\00:23:33.51 this all parts of autism they have, 00:23:33.54\00:23:35.86 the left side of the brain then it's effecting 00:23:35.89\00:23:37.94 their hearing to where they have such auditory acuity 00:23:37.97\00:23:43.65 that is disorder, absolutely torture to him, 00:23:43.68\00:23:47.21 yes, yes and then through therapy 00:23:47.24\00:23:48.82 they were able to help that, that must have 00:23:48.85\00:23:51.56 been a very big blessing. Yes, I know that therapy 00:23:51.59\00:23:54.81 that he needed to was to desensitize his skin 00:23:54.84\00:23:57.44 which we call sensory integration therapy. 00:23:57.47\00:24:00.00 He needed to be taken for a whole year 00:24:00.03\00:24:02.05 to an occupational therapy, so he was certified 00:24:02.08\00:24:05.21 in sensory integration disorder, 00:24:05.24\00:24:06.96 that was when he finally decided not to rip off 00:24:06.99\00:24:10.72 his clothes, because, so that's why 00:24:10.75\00:24:12.38 he was ripping off his clothes, because they feel 00:24:12.41\00:24:14.67 like when you are out on an elevator 00:24:14.70\00:24:16.05 and somebody touching you and you say you shock me, 00:24:16.08\00:24:18.43 yes, they feel that all over their body. 00:24:18.46\00:24:20.56 So it's like that static electricity, 00:24:21.24\00:24:23.39 those little shocks, 24/7 especially when you put 00:24:23.42\00:24:26.82 some type of material or clothes 00:24:26.85\00:24:28.39 and they can't tell you this is driving me nuts, 00:24:28.42\00:24:30.74 so they will take it off. At school the teachers 00:24:30.77\00:24:34.00 didn't know about that, so they used to scratch 00:24:34.03\00:24:36.13 his face and his chest, restraining him 00:24:36.16\00:24:38.93 when he was telling them the sense of your skin 00:24:38.96\00:24:41.03 is driving me nuts, even the scent 00:24:41.06\00:24:44.84 or the tone of the voice of people is like 00:24:44.87\00:24:47.30 they are completely they were around them, 00:24:47.33\00:24:49.87 doesn't make any sense to them and all they can do 00:24:49.90\00:24:52.09 when they can speak use to throw temper tantrums 00:24:52.12\00:24:55.40 and behaviors. And unless they recover from that 00:24:55.43\00:24:58.75 and can speak and say this is why I do what I do? 00:24:58.78\00:25:01.93 They suffer alone, it's not misbehaving 00:25:01.96\00:25:04.65 because they want to, it's because of the reason 00:25:04.68\00:25:07.03 that it's really making them to feel discomfort. 00:25:07.06\00:25:09.51 Well we've got so much more to talk about 00:25:09.54\00:25:13.25 and because we're certainly not going to leave you 00:25:13.28\00:25:16.17 without hope, I told you this is going to be a 00:25:16.20\00:25:18.40 program of encouragement and the encouragement 00:25:18.43\00:25:21.31 is Pedro's now in college and he is communicating 00:25:21.34\00:25:25.22 and God did even though your husband 00:25:25.25\00:25:30.86 did go to his rest, he accepted Christ 00:25:30.89\00:25:35.52 is his savior confessed his sins before he died, Amen. 00:25:35.55\00:25:38.61 So you have the blessed hope 00:25:38.64\00:25:40.85 that you will be reunited with him, 00:25:40.88\00:25:42.64 your daughter Dina is now healthy 00:25:42.67\00:25:46.00 and she is also getting her degree in psychology 00:25:46.03\00:25:49.11 because she wants to help other children 00:25:49.14\00:25:52.17 who are developmentally challenged 00:25:52.20\00:25:54.46 and we've got Pedro who we're going to hear 00:25:54.49\00:25:57.63 from during our second program, 00:25:57.66\00:25:59.51 who is going to college 00:25:59.54\00:26:01.63 and such a delightful young man. 00:26:01.66\00:26:03.90 So God has been good to you and let me ask you, 00:26:03.93\00:26:09.06 just if you could take just a few seconds 00:26:09.09\00:26:11.22 and look in this camera over here 00:26:11.25\00:26:13.00 what would you say to a parent 00:26:13.03\00:26:16.08 who has just received this diagnosis 00:26:16.11\00:26:20.40 for their child of autism? I will tell them 00:26:20.43\00:26:24.43 that with God everything is possible. 00:26:24.46\00:26:27.42 God could conquer language barrier, remember 00:26:27.45\00:26:31.58 that you have your son or your daughter eyes 00:26:31.61\00:26:34.04 and ears, nobody will do it, but you. 00:26:34.07\00:26:36.26 And I said like I did that Cross, 00:26:36.29\00:26:38.88 I say ladder to reach out for always. 00:26:38.91\00:26:41.55 Educate yourself, surround yourself 00:26:41.58\00:26:44.51 with supportive groups and tell your family 00:26:44.54\00:26:46.58 that all you need is their understanding, 00:26:46.61\00:26:48.94 you don't need them to repeat at you 00:26:48.97\00:26:50.95 but to re-understand and then to show love 00:26:50.98\00:26:53.03 for your child because they are really, really make us 00:26:53.06\00:26:55.73 happy when they are loved. Amen. 00:26:55.76\00:26:57.97 And as you said that the cross become a ladder 00:26:58.00\00:27:01.97 to get across to go there and know that, that child, 00:27:02.00\00:27:05.98 this precious child is one that's worth loving 00:27:06.01\00:27:10.07 and worth reaching and you have reached him 00:27:10.10\00:27:13.33 where he can now communicate with you again. 00:27:13.36\00:27:15.60 Esther, thank you so much for sharing today, 00:27:15.63\00:27:18.65 and Pedro we'll give you a chance to talk 00:27:18.68\00:27:21.53 on the next program, how's that. Okay. 00:27:21.56\00:27:24.89 For those of you at home, if you know someone 00:27:25.68\00:27:28.82 who has an autistic child or perhaps 00:27:28.85\00:27:31.79 you have one in your family, 00:27:31.82\00:27:33.02 I would really encourage you to have them 00:27:33.05\00:27:38.24 tune in for this program again next time 00:27:38.27\00:27:40.79 and see how, what hope God can give them 00:27:40.82\00:27:45.13 and you know, Romans 15:13 says, 00:27:45.16\00:27:47.48 Now may the God of hope fill you to overflow 00:27:47.51\00:27:50.09 with joy as you trust him, thank you so much. 00:27:50.12\00:27:54.00